FARA News
2008
NEW CD RELEASE, 12/18/08: THE VOYCES ~ A NEW DAY NEVER FARAWAY : A special compilation of live and (mostly) previously unreleased songs
- 100% of the proceeds go directly to The Friedreich's Ataxia Research Alliance (FARA).
To hear a sample of The Voyces, click: Listen
To order your copy, click on: The Voyces
University of Chicago site for the Collaborative Clinical Research Network in FA Recruiting Patients
December 9, 2008
Kyle Bryant’s Ride Ataxia III. March 16-19, 2009. Portland, OR to Seattle, WA
www.rideataxia.org
Pre-Ride Information Packet
Online Registration
Online Fundraising
2008 Friedreich's Ataxia Symposium presented by the Children's Hospital of Philadelphia
A Celebration of Spirit, Hope, and Community Reception (Front) (Back)
December 5, 2008
Friedreich's Ataxia Symposium
December 6, 2008
Santhera Enrolls Last Patient in Pivotal US Phase III with SNT-MC17/Idebenone in Friedreich’s Ataxia
October 31, 2008
Social Security Announces Nationwide Launch of Compassionate Allowances Process Will Fast Track Applications For People with Cancers and Rare Diseases
October 27, 2008
EDS, Employees garner FARA Partner of the Year honor
September 11, 2008
Alliance Charities, Inc. Introduces a Way to Support Causes in Tough Economic Times
September 9, 2008
Repligen Receives Research Grants to Support Friedreich's Ataxia Development Program
September 4, 2008
Gill Family Wins FARA a Spot on Jimmie Johnson’s Helmet of Hope To Be Worn During NASCAR's Pepsi 500 on August 31, 2008
August 14, 2008
Save the Date—December 6, 2008 Friedreich’s Ataxia Symposium presented by The Children’s Hospital of Philadelphia
August 13, 2008
Canada First to Approve Drug in Friedreich’s Ataxia
July 20, 2008
Kristi Wright Publishes Futuristic Children’s Book
June 18, 2008
Keeping the FAITH
June 18, 2008
Making the Best of a Bad Situation
May 22, 2008
The Race Against Time for Friedreich’s Ataxia—Matt Rupel’s year in review
May 21, 2008
Ataxia rider on the Attack
May 20, 2008
Congressman Andrews FA Awareness Day Resolution
May 17, 2008
The Race Against Time for Friedreich's Ataxia — A true test of endurance
May 14, 2008
Big Run for Little Known Cause
May 3, 2008
The Cake Eaters
April 2008
The Cake Eaters is a film, directed by Mary Stuart Masterson, about a teen-age girl with Friedreich’s ataxia. The film is being shown across the country at the following film festivals: (Click on a festival name for more information, including how to purchase tickets.)
Sedona International Film Festival
February 29th and March2nd
Florida Film Festival
March 29th and April 2nd
Atlanta Film Festival
April 12th
California Independent Film Festival
April 19th
Newport Beach Film Festival
April 24th-May 1st
Newport International Film Festival
June 3rd-8th
Keeping Kids Healthy Living with Friedreich’s Ataxia
Winner of a 2008 NY Emmy, this segment profiles three families with Friedreich’s Ataxia.
San Francisco Prepares for Olympic Torch Stop
April 4, 2008
Local Man to Carry Olympic Torch
April 4, 2008
‘Working for Lindsay’ Campaign Pays Off
March 31, 2008
Cyclists Bring Attention to Disabling Disease- Friedreich’s Ataxia
March 27, 2008
Ride Ataxia II Bikers Stop in Tehachapi
March 23, 2008
Fundraising Bicyclist is Las Vegas Bound
March 18, 2008
Ride Ataxia II – The Ride is a 13 day bike trip covering 600+ miles to raise awareness and research funds for Friedreich’s ataxia.
March 15, 2008 – March 27, 2008
Linda’s Ataxia Ride
March 14, 2008
Ride for Ataxia
March 13, 2008