The Friedreich’s Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreich’s ataxia.
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Newsletter
SCIENTIFIC NEWS
- Coenzyme Q and vitamin E deficiency in Friedreich's ataxia: predictor of efficacy of vitamin E and coenzyme Q therapy.
- Idebenone in Friedreich's ataxia
- Visual system involvement in patients with Friedreich's ataxia.
- December 13, 2008
Neyland Family Fight to End FA Party
Fort Stockton, TX
ruth_neyland@hotmail.com - January 8, 2009
Fox Chapel Area High School Alumni Orchestra Concert
Fox Chapel Area High School Auditorium, Pittsburgh, PA
Mairi_Thompson@fcasd.edu - January 15, 2009
Play for FA: Family Fitness Night
Hilton Central School; Rochester, NY
KBELLNIER@hilton.k12.ny.us - January 24, 2009
Stars for a Night . . . A Glimmer of Hope
Rochester, NY DACBrown@rochester.rr.com - NEW CD RELEASE, 12/18/08: THE VOYCES ~ A NEW DAY NEVER FARAWAY : A special compilation of live and (mostly) previously unreleased songs - 100% of the proceeds go directly to The Friedreich's Ataxia Research Alliance (FARA)
- Ride Ataxia III Registration Now Available! March 16-19, 2009 Portland, OR to Seattle, WA.
- New Website Resource Available: "Issues to Discuss with Your Doctor Prior to Surgery in FA Patients" by Mary-Lisa Orth
- Santhera Enrolls Last Patient in Pivotal US Phase III with SNT-MC17/Idebenone in Friedreich's Ataxia
- Social Security Announces Nationwide Launch of Compassionate Allowances Process Will Fast Track Applications For People with Cancers and Rare Diseases
- Keeping Kids Healthy Living with Friedreich’s Ataxia
UPCOMING EVENTS
FARA NEWS
Online grant submission allows for faster evaluation and approval of applications.
Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.
You can have an impact on research advancement by providing critical funds. REQUEST KIT
