Sam and Alex have submitted an application to Extreme Makeover: Home Edition, hosted by ABC. The house they live in was built in 1890 and their mother, Mary, has struggled with the support of others to make the house accessible for the girls. It has been a major struggle monetarily and emotionally.  The winters are very hard on the girls; the heating system is not sufficient and there are holes in the walls, as well as horrible roof leaks. There is no garage, so to get in to the house they need to use a ramp outside. Rain, snow, and ice are a major concern. Jack and I are starting by signing this petition and donating an elevator to ABC if they are chosen. Thank you for your time and concern! Sign the Online Petition

Read the article A Prom Night Promise

Actress Mary Stuart Masterson recently hosted a fundraiser at the Owenego Inn in Branford, Ct., on behalf of Samantha and Alexandria Bode, to help find a cure for Friedreich's ataxia. Also attending was actor Jeremy Davidson. The fundraiser was organized by Mary Caruso on behalf of her two daughters. Read the full press release.

(L-R) Sam, Mary Stuart Masterson, and Alexandria

(L-R) Sam, Mary (Sam & Alexandria's mom), Jeremy Davidson, Alexandria, and Mary Stuart Masterson